Wahoo! I’ve hit the halfway point! Just to let you know, the pregnancy is going well, the baby’s development is right on track and if it weren’t for CP I don’t think I’d have any complaints.
Specific to CP
Starting 2 or 3 weeks ago I started having some problems with my ankles giving out and increased lower leg pain. I discussed this with my doctor at my last appointment and she suggested starting physical therapy, an idea I was very in favor of. She wrote me a prescription for an associated office and my first appointment was yesterday.
I really miss the days of receiving physical therapy services at the hospital where I had my surgeries and receiving specialized cerebral palsy care. Now I have to sit and explain my surgeries and spasticity to people with eyes popping out of their heads. “Yes I am sure that I am an interesting case to you.” I cannot complain to much though, I really feel that I received the care and recommendations that I desired.
The biggest obstacle I face now is the cost of the therapy. Ever since leaving the office I’ve been trying to wrap my head around it and find solutions. I’m forced to analyze my need verses my pocketbook—I’m wishing now that I hadn’t made a complaint until week 30 or perhaps I should make physical therapy priority during my postpartum rehabilitation and simply opt-out of it for the duration of my pregnancy. All of these thoughts also spark thoughts of my middle and late adulthood and how find to affordable care for that time of my life.
No, I am not “pining” over this issue I’m sure that my husband and I can find the right solution, I’ve always been able to take care of my body. I am thinking that I will take and use the information from the PT, then opt for a gym membership where I could have access occasionally to personal trainers for the duration of my pregnancy. (The gym has always served me well.) Then start physical therapy again after my child is born and physically I am at a very low point.
I can imagine medical professionals shaking their heads at me and other persons with cerebral palsy nodding (I know others have made similar choices.) Please understand that I am not complaining, making a statement on the country’s health care, or asking anything from anyone. I am writing my reflections here, because if you or someone you love is a woman with spastic diplegic cerebral palsy considering pregnancy this is something you will likely need to think about too. I will keep you updated on my choices on this subject.
