26 weeks, 4 days--Q&A

You seem to have had a successful experience falling in love; do you have any dating advice for people with Cerebral Palsy?

Wow, what an intimidating question! As you may be able to tell I’ve been putting off creating a generalized answer that I could post here on the blog. However, this just might be my most popular question, so here is my attempt. Please remember that I am not an expert.

My first bit of advice is to get out of the house and go to where single people are. I know we all have different ability levels and this will be more difficult for some than for others, but when it comes to meeting new people--usually this means getting out of the house. Most of my dating and socializing as a single person came from two sources; church and college. These are two great places to meet eligible and datable people, both with and without disabilities. On top of dating I believe that church and college will foster one’s self identity and progression through life. So even if you don’t meet someone I think you will be a happier person for participating. If church or school are not your “thing” I would recommend joining a organization of “do gooders” and perform service for others—it’s a great place to meet the right sort of person to date and serving next to people helps build relationships and helps people see past your disabilities.

Another big issue with dating is transportation, I have heard people of all ability levels complain that they cannot date because they have no car or cannot drive. To this I can tell you that Matt and I had a 100% “Car-less Courtship” and about 8 months of our 2 year marriage have been car-less as well. I know that public transit isn’t ideal but it is something, don’t discount it.

 Here are another few pointers: 

• When socializing try not to complain about your disabilities; negativity and complaining aren't very attractive. If you need to mention something say that you would have difficulty with this or that activity, and try to say it with a smile on your face. 
• I think that is excellent to expect high standards from the people you date but also set high standards for yourself too. Be a person you would want to date. 
• And finally remember that it’s okay to be single, you can be very happy as a single person. Don’t settle for dating someone that demeans your ability level just because you don’t want to be alone. Besides being a happy single person is very attractive.

Do you have a birth plan?

Yes and no. There is a lot in how CP will affect my delivery that I don’t know, so I need to be flexible. Here are some of my thoughts. 

“Ideally” I’d like to deliver this baby naturally, aka no pain meds. I know this might be nothing but vanity on my part but after 6 osteotomies (where your bone is sawn in half and rotated) I figure that I can handle pain just fine. Pain tolerance is simply part of my identity so I don’t want to feel weak. Also of course, I have the same arguments against epidurals many other women have. I don’t want to give myself unnecessary medication and put the child in danger or distress. My doctor has suggested, though, that an epidural may reduce my spasticity. I’ve heard of woman with CP in labor for hours (30 hrs plus) and not being able to deliver due to spasticity, resulting in emergencies. If an epidural really would loosen my muscles and make delivery less dangerous I cannot let my pride get in the way. For now though I’m not convinced it really would loosen my muscles—if any of you have had an experience related to this, please let me know.

I would prefer to not have a C-section but I am not opposed either, under the right circumstances. If we decide that my pelvis is too tight to deliver, I am in favor of a planned C-section and avoiding any distress to the baby. Since I want to deliver vaginally so much the doctor has suggested that we could try and deliver vaginally but have a shorter time limit before moving to the operating room. I am most comfortable with this suggestion.

I am VERY opposed to an induction with my CP. Pitocin will increase distress on my baby and my tight pelvis will too. I will NOT put my child in that situation. If there is any suggestion of it I will schedule a C-section and skip all the inevitable trauma to my child.

So those are my thoughts so far—but admittedly I still have a lot to learn.